RockAss.net / mostlytrue

The mostly true adventures of Keith Lowell Jensen told in no particular order

Saturday, August 20, 2005

I Hate My Guts

This story was reviewed in the Washinton Post! Read about it here.

IMPORTANT: If you found this after concerns about your own health led you to search the internet for information please feel free to write me. I'm still struggling with this and would be happy to share my experiences and trade notes with you. The cliche holds true: You're not alone. Write to klj@TAKETHISPARTOUTnotcomedy.com.

Click on the picture to enlarge, at your own risk. For more pictures of my insides, check out these cool brain scan pics.


“I haven’t had a solid shit in over 20 years.”

My father said it lightly. A casual statement of a fact he’d become comfortable with or resigned to at least. I on the other hand, didn’t sleep well for several nights. I’d had more problems with my stomach then any of my four brothers. My childhood is full of miserable memories like: the roto-rooter guy pulling a pair of my underwear out of the pipes after I’d flushed them rather than owning up to another accident; trying to convince my parents that I’d been framed, that my older brother had pooped my pants; sneaking home from the bus with a load in my pants, taking the long route as it was less populated. By the time I reached my teen years my stomach (and bowels) had settled down and by adulthood I’d become a vegan, and eventually a little bit of a health nut. I was sure my dad’s rotten bowels were no longer a part of my inheritance.

So, after four weeks of loose bowels, diarrhea, the runs, watery stools or whatever else you’d like to call it, I began to worry. I told my girlfriend, Bryna, that I was concerned over “problems with my stomach.” We’d been together over ten years, but there were parts of me I was still not prepared to share with her. She knew of my dad’s troubles and I’m sure she could figure out what I meant. She insisted I call the doctor. The advice nurse seemed to think this was pretty serious and within an hour a doctor had his finger up my ass. His was not the first professional finger up my ass, but I must say, he was to the manor born. Long thing fingers made this the least torturous trip up my bum to date. It seems that some doctors want to make it hurt, just so we can both be sure we’re not having a homosexual experience. I’ve actually considered seeking a gay doctor, just to find a gentler touch. And if I end up enjoying the experience, so be it.

Of course it’d be my luck that this least unpleasant of rectal exams would lead to the most invasive and miserable one yet. The doctor found small traces of blood, and no sign of bacterial infection. I was sent home with two cups of instant stool sample (just add stool) and an appointment for a colonoscopy.
The stool sample preparation was revolting. I can now rest assured that I have no scatological impulses. I kept everything in a brown paper bag, the specimen containers, the popsicle sticks, the little cup that hangs in the toilet to catch the offending matter, and I kept this bag out of Bryna’s sight. She was great, and really wanted to be there for me, but I had to tell her that there were things I needed to do on my own. She settled for a promise that I would share any and all news of or change in my condition with her.

I had to hold to that promise too soon as the trace amounts of blood the doctor detected became a much larger amount of blood. I’d say it scared the shit out of me but that would just confuse things. I dialed the advice nurse who calmed me down and let me know that this wasn’t as serious as I thought. The blood was relatively low in quantity, and was nice red liquid blood. Black or tarry blood or stool is a sign of bleeding further up the pipes. I just had a small amount of bleeding in the colon, which we’d already established, and I could wait the few days to get the results of my stool samples and colonsoscopy.

So I relaxed and got some sleep with my wonderful, understanding girlfriend holding me and telling me it would be okay.

The day before my exam, I had to fast, liquids only, up till 10pm, and then nothing, not even water from 10 pm until the exam at 10 am the next morning. I dropped off my mysterious brown bag. I was given a HUGE tub of liquid laxative/nutritional supplement to drink, one cup every fifteen minutes. I popped on some Simpsons DVDs and began drinking about two cups per episode (with a few minutes to spare since there were no commercials. By the fourth episode my head was aching and a gag reflex had started. My body decided it had had enough of this foul, pineapple flavored brew. Then my bowels let me know that it was working. The only thing I could think of, then or now, to describe what happened when I reached that toilet, in just the nick of time, is Old Faithful. I took a seat and 5 seconds later I was worrying that the toilet would over flow. The liquid seemed to be gushing out no more solidified than it went in. I was relieved (unintentional bad pun, I swear) that Bryna was working and was not home for my jogs to the bathroom. I kept filling and emptying myself as instructed, until half the bottle was gone. It seemed strange that they’d give me twice what I needed but I surely felt cleansed and ready for probing.

I was starving and exhausted and despite the excitement and terror of knowing that they were “going in” come morning, I managed to get some sleep.

Bryna drove me to the hospital and I was actually a little giddy. I have always enjoyed going through extreme experience in a safe controlled environment, be it riding a roller coaster at an amusement park or having four wisdom teeth pulled while fully conscious at the oral surgeons office. This had an extra threat of attacking my modesty but that only made it that much more exhilarating. I’m not entirely comfortable with how much I enjoy these experiences, but hey, if I get to be the guy who walks out of the operating room with a mouthful of bloody gauze and a solid case of the giggles, I shouldn’t complain.

Once at the doctor’s office, I established that I did indeed have a ride home and I proved that this procedure would indeed be paid for. During the pre-procedure interview they told me I was supposed to have consumed ALL of the liquid. A friend of my fathers had actually had the drugs administered, and the camera inserted only to be sent home because he was literally, full of shit (sorry, couldn’t help it.)

What a nightmare this would be, having to drink all that horrible gunk again. Having to blow ass for the better part of a season of The Simpsons. I crossed my fingers slipped out of my cloths into a little blue gown that opened in the back.

I was led to the big room with stations cordoned of by curtains and introduced to the anesthesiologist. The one fear I have that I was not anxious to confront is my fear of being put under. I asked the fellow with the needles if he could give me a light enough dose that I could stay awake. He said sure, and told me I could even watch on the little tv next to my bed as they made a journey through my colon. This made me wish I’d stuck a few little plastic monsters up there.

He shot me full of drugs, and I was O U T in less then a minute. I haven’t done recreational drugs, not even alcohol in years and I’d forgotten how much fun it can be to have your senses flipped upside down. My eyesight echoed, my limbs grew heavy, breathing became a very satisfying experience and then the lights went out for this lightweight.

I can only speculate what happened in between, but I woke up on my side and I could feel something inside of me. The wow fancy amazing camera was way up under my ribs, poking me, ON THE INSIDE. “That hurts” I announced. The three or four or twenty thousand people behind me all ignored me. I started chanting and doubling over, “It hurts, it hurts, it hurts.” My pal with the needles suddenly reappeared and when I woke up again they were all done.

My ass didn’t hurt. My insides didn’t hurt. I was groggy and my whole body was heavy from the drugs. I was put in a wheel chair and rolled out to Bryna. I saw the doctor putting on her coat, and making to leave. This pissed me off. I wanted to know what she saw. You don’t just shove a camera up someone’s ass and then leave without so much as a snuggle, so I yelled at her. “Hey. Where the fuck do you think you’re going?” No one flinched at my yelling and swearing and she left. Bryna told me later that I whispered it, but she could tell my intent and she fetched the doctor’s assistant. He told me that a specialist would see me and discuss their finding but that I looked like I was going to be fine. He sent me home with pictures of my colon. This thrilled me despite the puss and blood that was apparent. I had pictures of my own freakin’ colon, so cool.

My sweetheart got me home, and into bed, and I was too drugged to care that I was farting long glorious farts the whole way. You see, part of the procedures is inflating the colon like a balloon, giving the camera more room to maneuver and a better view. The balloon then must deflate, which it did, with great efficiency and exuberance.

By the time I saw the specialist my symptoms had abated. I was having nice solid turds sans blood. I had also gotten over my shyness as I went about describing said turds as well as the camera up my ass, the resulting farts, the joys of shitting blood, with whoever didn’t get away fast enough. The photos were shown around. They were even published online resulting in a fan site dedicated to my colon and an original piece of Art being made from the photos and submitted to be displayed at the State Fair. The State Fair rejected my colon.

I saw the specialist, and luckily I had brought my photos since they didn’t have my records. This was the great healthcare I was paying for? The doctor resisted any talk of nutritional considerations, even urging me not to give up coffee? Then in the same breath he told me to avoid dairy or alcohol. He didn’t believe me when I said that my symptoms went away and to prove that I was still suffering he proceeded to poke me in the belly harder and harder saying “Does this hurt.” Eventually it did hurt, as it would on any healthy person, and when I said as much, he smiled and slapped a prescription of steroids and a colon specific medicine on me.

The name of that colon medicine? Ready yourself. Asacol (pronounced ass, as in Ass, uh, cole, like in Colon.) Nothing worse than a pharmacist with a sense of humor.
I got in a real dark mood as they went about determining if I had ulcerative colitis (my white blood cells rejecting and attacking my colon lining) or crohns (my white blood cells going after my entire digestive tract.) Chrons would be much more serious. Worse case scenario for ulcerative colitis, they remove your colon and fix you up with a shit bag. With chrons there’s little they can do so you’d just better hope you respond to medication. Both conditions are genetic and not believed to be caused by any environmental factors.

I became increasingly depressed (which I was later told is a common symptom of ulcerative colitis) as I stressed out over just how deep this rabbit hole was going to be. I have always been a hypochondriac and so having a real disease gave validations to insecurities that I had managed to keep at bay until now. I underwent a slew of tests. They pored barium down my throat to ex-ray my stomach and small intestine. Yum, barium. After drinking it you give birth to some solid white shits. They took what seemed like pints of my blood for testing. It was determined that crohns was highly unlikely. I think chrons exists so that people with u.c. can say, “At least it’s not chrons.” What people with crohns get to say, I’m not sure.

I finished my run of the steroids, and the asacol (snicker, snicker) seems to be doing its job. My mistrust of doctors and medicines had me reducing my own dose despite my family’s urging me not to. The immediate return of symptoms convinced me that I do indeed need this drug. I am continuing to experiment with my diet. I belonged to an online support group for people with U.C. but I had to quit. The folks on the list all have it worse than me and they were giving me nightmares. I guess folks who are asymptomatic would be less likely to post to such a board. The people who carry an extra set of cloths with them at all times in case they shit themselves were not helping me to stay calm and relaxed, an important part of treating this condition. I’ve lost forty pounds, and I was about forty pounds over weight, so I’ve let it be the silver lining to this cloud. And if someday things take a turn for the worst and they have to take my colon, Hey, that’s another couple of pounds right there!


Believe it or not, my diseased, bleeding, puss oozing colon has a fan site. Click this link and have a gander. Link: I hate Keith Lowell Jensen's Guts.

15 Comments:

At 9:40 PM, Anonymous Anonymous said...

so sorry about all the trouble, at least I know how you managed to become a vegan!!! I'd never have the discipline...

speaking of Krohn's, a friend had hideous, debilitating stomach problems growing up and one day, 5 years ago, a nutritionist suggested a possible wheat/gluten allergy, she stopped eating gluten and her problems improved 80%.

I'm sure all you wanted was some more unsolicited medical advice, heh heh! It's just that her story was to me so astounding that I can't help sharing it...

 
At 10:52 PM, Blogger Keith Lowell Jensen said...

I had problems with gluten as a kid and so I eliminated it when these problems came up. I've also reduced my refined or processed or anything other than naturally occuring sugar intake to almost none. Thanks for the tips.

And just for the record, I was vegan long before the really serious stomach issues. It's more of an environmentalist thing than anything else.

Peace,
KLJ

 
At 10:01 AM, Anonymous Anonymous said...

My 5 year old said I was reading this forever.

He looked at the colonoscopy pic and said "What's THAT?"
I said it the inside of Keith Lowell's colon.
"What's a colon?"
"It's the inside of your body where the poop comes out. The doctor put a camera inside to look around to see if he was sick. But(t) it looks like he is okay."
He said "Yuck. I don't want to do THAT!"

Well, I'm all for weird experiments myself. Had a CT scan a month ago, that was super creepy and fun. (I'm okay). Had alot of other things too...seems fun when you are younger, but as the years move on, I suppose the threat of mortality might take away a bit of that humor...or maybe not! Bring on the nitrous!

From a girl who had colitis as a child....my sympathy. Perhaps you could start panhandling for toilet paper! Drag a toilet out to a corner and sit on it with a nude body suit and your pants down...

cheers!
kerri

 
At 7:23 PM, Anonymous Anonymous said...

Stumbled upon your journal after following a number of blog links, and just wanted you to know that I'm loving your stories and general material. Nicely candid with a great blend of humor and vulnerability -- in this piece especially. Thanks.

 
At 7:46 PM, Blogger Keith Lowell Jensen said...

Thanks Anon. That's really nice to read and great of you to take the time to make me feel good about my writing.

 
At 10:15 PM, Blogger Michelle said...

A belated you're welcome. I keep coming back for more...so very fetching this blog of yours is. Have in fact added you to my list of links because there's just so darn much here to be shared and enjoyed.

 
At 6:48 AM, Blogger Keith Lowell Jensen said...

Thanks again. I'm honored to be on your short list, especially right next to Cockeyed.com. I will give your blog a better checking out when I'm at work today and have time to goof online.

 
At 11:28 PM, Anonymous Anonymous said...

I enjoyed reading your story, because I am currently experiencing a very simallar one. exept, i have chron's. Its nice to be able to make light of a situation that is an absolutly miserable one. My case of chrons is actually moderate so im one of the lucky few.


I am on steroids and an anti-inflamitory called Pentasa and they seem to be helping some what. but for the past two nights i have been in so much pain that i cant sleep. I have also resently decided to become vegan, because I also believe that what I eat does effect how my chrons is. My doctor seems to think otherwise.

My Dad has u.c., and he has been so generous to pass down an IBD to me. His u.c. is in remission, he isnt on any medication and has been with out symptoms for 10 years. He has done this with diet and exersize. He also swears by psylim hulls every day taken with some juice. when he told my doctor this, he might as well have shot him in the head. the doctor then went on to ignore the fact that I existed and told my dad he is living in a "Fools Paradise" and that if he wasnt on any medications he is GOING to get colon cancer and die a horrible death. what a wonderful check up that was.

 
At 6:24 AM, Blogger Keith Lowell Jensen said...

Sorry to hear about your chrons and to hear that you've got a close minded doctor.
Before going vegan, you should consider adopting the diet mapped out in "Breaking the Vicious Cycle" by Elaine Gottschall.
At least read it. She has some great insight into nutrition and IBD.
Best of luck to you.

 
At 4:08 PM, Anonymous Anonymous said...

Dude... i really appreciate your sense of humor even in these kind of situations. I have moderate UC and feels good to see ur blog with so much humor. I was recently diagnosed with UC and I feel like I am seeing the bright side of life now.

Thanks for the blog and good luck to you !

cheers,
Sash

 
At 4:13 PM, Blogger Keith Lowell Jensen said...

Sorry to hear about your UC Sash.
I'm glad my article did you some good. And your comment did me worlds of good as I'm about to go read this story at the Morbid Curiosity reading.
Good luck.

 
At 7:03 PM, Anonymous Anonymous said...

Sorry to hear about all your problems. I have been dealing with it too for 3 years. I finally had a case of gut pain so bad that doctors finally did the right CT scan and found very bad diverticulitis. Took them 4 tries until they did a triphasic scan with gi contrast. Even had a colonoscopy but they claim that there was nothing abnormal.

After having 13" inches of my colon removed I thought I was going to be ok but then I got colitis 6 weeks later. Took Asacol for two weeks and then developed an allergy to it that caused my heart to swell up so much it nearly stopped. It was weird first my hair started falling out, my urine turned brown, headache, fever and painful breathing. All this landed me in the hospital for 7 days.

So far I'm taking tons of probiotics but I'm still passing puss with bloody mucous. I have been tested for all food allergies and nothing. Are there any other options out there rather than just waiting it out and hoping it goes into remission. Doctors won't give my any drugs like Asacol again for fear of another allergic episode.

 
At 5:56 PM, Anonymous Anonymous said...

Keith - I came across your site in an interesting way today...

I'm currently taking Asacol and had heard it pronounced both ways: ass-acol, and ay-sacol.

The pharmacist was saying ass-acol and my doctor said ay-sacol...so I Googled: "asacol pronounced" and the link to this blog entry was the only thing that showed up! :-)

I did ctrl+f to go straight to your info on the pronunciation and loved your humor...wound up reading your whole post and realized that we have a lot in common.

I just got out of the hospital after an almost 3 week visit. I'm female, 31 years old, also vegan.

I just had a colonoscopy and endocsopy on Friday after drinking the gunky stuff to clear out my system. I separated the solution into 4 containers so I could try different flavors. Orange was pretty high ranking until I did a pineapple/lemon-lime mix. I found that one the easiest to tolerate. Though, admittedly, I also held my nose when I drank it and then swished my mouth out with some apple juice after each swallow. haha

The news was good when they took a look inside. He said there was 150% improvement from when they had first looked inside when I got into the hospital. So my stuff is healing up and I'm ultra grateful for that.

My situation, which hasn't been officially diagnosed, involved ulcers in my mouth and esophagus. My stomach was fine, and then my intestines were also with lesions and ulcers and things that showed up white on the camera images.

I've been on a clear liquid diet for almost a month now because the sores in my esophagus had been so bad. But the latest images showed that there are no open sores in my esophagus, just places where they can see that the sores were.

I've been getting my nutrients through TPN - an IV bag of stuff that looks like baby formula. I have it at home now that I'm out of the hospital too.

I have such cravings for yummy foods, but my little esophagus isn't ready for it yet. Patience, patience, patience. :-)

What got me into the whole situation was rather abrupt. I don't have anything like this in my family tree, so genetics hasn't even crossed my mind around it.

I had food poisoning (it seemed) then what seemed like a flu, and then it took a turn for the worst when my stool got bloody and I barely realized it because I wouldn't even look when I wiped or flushed lest I wind up vomiting at the same time.

It wasn't until I was in the ER and they had me shit in "a hat" that I saw that most of what was coming out wasn't poo at all, but blood.

Talk about scared. I pulled the string in the bathroom for the nurse to come in and was so freaked out. Then I wound up in the hospital for almost 3 weeks. Crazy.

So I was sick for about 3 weeks with various puking, flu-like, diarrhea things, and then just like that I was in the hospital.

Though I should say that the month before I did have some random, sporadic stomach aches that I was confused about, but weren't alarming.

Stress ulcers crossed my mind, but that was about it.

But all this seems to be healing up in me and maybe the Asacol is really working.

I'm also doing a Remecaid protocol. Not sure if that's exactly how it's spelled, but it's like I got one treatment (which feels like hell) and then a week later I got another one.

Then in about 4 weeks I'll get another one, and then they stretch them out further and further. So hopefully that is really doing the trick too.

I'm definitely going to be paying attention to the food side of things.

I'm avoiding refined sugar and only doing naturally occurring things from fruits, and will also be avoiding vinegar in all things (dressings, ketchup, mustard, etc.) because a friend of mine who has had this situation said that her ulcers flare up with that ingredient big time.

I am taking soy probiotics and looking into something that I can't remember the name of, but it has a 3 in it and it's a probiotic you get through the mail. It's supposed to be great for this type of stuff. Wish I remembered the name of it.

Anyway....thanks for posting your experiences so candidly. From my own experiences I realize how challenging these health issues can be and I wish you all the best with your recovery.

For me, I can tell that this health crisis is the start of a totally fresh life. I have renewed appreciation for everything around me and I'm so excited to see what comes next. If this is what it took for me to wake up to myself, then it has all been worth it. I'm not complaining about losing 20 pounds either. ;-)

 
At 6:33 AM, Anonymous Charlie said...

Hey,

I got a good laugh out of your blog. Well, good as it could be given the fact I'm in for the same test (eek). I've been trying to ignore this problem for about seven years (started up right as I was turning 20 and no one would believe me).

I'm a mom of three now so...I'm used to invasive medical procedures. I even survived delivering with about fifteen people in the room--not the least of which a relative handy with a mirror exclaiming "You've GOT to SEE this! WOW!" Answer--"No, really, I don't!" (Kicked ALL the relatives out for the next kids...got older and wiser! ha!)

Now, I'm sick and tired (har, har) of bleeding out the ass. So, I'll be getting a colonoscopy soon. The more I read, though, the more it sounds like U.C.

Bummer. Anyhow, thanks for the laugh and the info!

Best of luck to you on your continued recovery!!

 
At 8:12 PM, Anonymous Anonymous said...

HA HA HA
im only laughing at your awsome use of sarcasim. Thats something of a gift

Ive had a pretty traumetizing experience with doctors. When i was 13 i had screwed up my knee something terrible. I was told i may never be able to walk without aid again. A 5 out of 8 chance or something like that. I was told only until after they stuck long tubular things into 2 narrow slits in my knee.

I was scared than but it didnt stop me from geting back out on my bike.....

but after the keyhole surgery, i came out with two functional legs and a lolly pop. Only walked with a brace and a set of crutches for a month.

and how can you say "buddy with needles" im 24 and im terrifide of needles still...
its just that they are long and pointy and thin and i keep getting the feeling they are going to break off in my arm or something.

Regardless, it was a good read, thanks for that!

 

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